Mika
Mom to Layah Faith
Born June 2nd, 2008
Born into Heaven June 8th, 2008
Alabaster, Alabama
My husband Matt and I have been married almost 8 years. We have an 8 year old, Tobias Gabriel, who we call Tobi. Tobi was born September 8th, 2002, at 26.4 weeks and weighed 2 lbs and 3 oz. He was born in 59 minutes from the time we arrived at the hospital, pulled the parking ticket out, and they pulled him out emergency c-section. At the time, it was unknown why Tobi was born so early. I had been followed by the high risk Maternal Fetal Medicine doctors at UAB due to a rare (only about 600 cases in the world) metabolic muscle disease I have that is predominantly diagnosed only in males. All I could do for Tobi throughout those long days and nights, (108 days in the NICU to be specific) was to pump breast milk, which I did for 15 months. The doctors and nurses call it "liquid gold" for all babies, but especially preemies. Statistically, the survival rate order is black females, black males, white females, white males, so they call the white males, "wimpy white boys", but we have a different label, our miracle son of God. Tobi was discharged from UAB Hopsital 3 days before Christmas. It was the best Christmas present ever! Tobi's had 10 surgeries primarily due to the BPD (Bronchopulmonary displesia) lung disease, and secondary, due to being born so early. He has bilateral sensorineural hearing loss and wears hearing aids, but is not deaf, and has been aided since 13 months. It's all he knows. The are his "ears". He is extremely bright, and most who meet him, would have never guessed he was so tiny at birth.
.png)
Posts
